department of family studies and community development


January - June 2013

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Study 1

Study 1 personnel developed a detailed interview protocol and conducted in-depth interviews with Medicaid officials from seven states that have 1915(c) Home and Community-Based Services waivers for individuals with autism. The focus of the interviews was to gather information on the facilitators and barriers to adoption of 1915(c) waivers in their states. The interviews were transcribed and analyzed for themes. They will be used in the development of an online survey for all states.

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Study 2

A sample of 48 participants from previous Maryland statewide surveys of families using the Autism Waiver or on the Registry were identified by the Study 2 team and contacted about their willingness to participate in qualitative interviews. The team developed the interview protocol and a qualitative interviewer training package. Several interviewers were trained and some interviews were conducted. Analysis of the interview data began.

July - September 2013

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Study 1

The online survey of Medicaid officials from all 50 states and the District of Columbia was developed. The questions focus on the facilitators and barriers to adoption of autism waivers, the use of a range of Medicaid services to support children and youth with autism and the available services and supports for transition age youth with autism.

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Study 2

Forty-nine qualitative interviews were completed and transcribed. Analysis of the interview data continued.

October 2013 - March 2014

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Study 1

The online survey of state Medicaid officials was distributed. By May, 84% of the states had completed a survey. Analysis of the survey data began. Based on the state survey data, the Study 1 team made recommendations to the Study 2 team for modifications to the Autism Services and Supports: Impact on Families Survey (formerly the Maryland Autism Services Survey).

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Study 2

Analysis of the qualitative interviews continued and the Study 2 team also worked on revisions to the Autism Services and Supports: Impact on Families Survey in preparation for statewide administration.

April - October 2014

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Study 1

The Study 1 team authored two articles about their research and presented findings at the American Public Health Association's annual meeting in November.

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Study 2

The Autism Services and Supports: Impact on Families Survey was made available in July to several thousand Maryland families who are on either the Maryland Autism Waiver or Registry.

November 2014 - April 2015

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Study 2

Survey data is being analyzed.

May - September 2015

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Study 2

All of the outcomes will be shared with the project advisory board. The Study 2 team will prepare a final report, an article and a conference submission.

Department of Family Studies and Community Development
College of Liberal Arts Building, Suite 2210
Hours: Monday - Friday, 8:00 a.m. - 4:30 p.m.

Phone: 410-704-5851
Fax: 410-704-3612


View the Study 1, state Medicaid officials survey.

• View the State Adoption of Medicaid 1915 (c) Waivers for Children and Youth with Autism Spectrum Disorders (ASD) poster that was presented at the 2014 American Public Health Association annual meeting.

View our Family Briefs, which contain tips and wisdom for families on Case Management, Advocacy, Finances, Health Services and Informal Support.





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